Thursday, June 2, 2011

An undone post, but it's all I can do for today

I have a lot of things to talk to you, dear readers, about. But today, I'm going to talk about my mom.

My lovely mother. It is so hard for me to think about this, but I've got to come to terms with it.

My mom has cystic fibrosis. We found this out just a few weeks after my aunt, who also was recently diagnosed with CF, passed away.

I can't imagine how my mom is dealing with this. Seeing your sister die from this awful disease and finding out weeks later that you also have it. I know it's been nerve-wrecking for her. Up 'til now she has had virtually no symptoms of this disease - which in all honesty is probably a really, really good thing.

I haven't been too terribly worried (or maybe I've just been avoiding coming to terms with it) because we're still in the finding-out stages of this. They've done a bazillion tests on her to see what type of CF she has (turns out it's really rare), but they haven't begun treating her fully yet because they're waiting on all the test results first.

It's like I told my friend today - this just came out of nowhere! It makes my head spin to think about it. Most people are diagnosed with this at birth or shortly thereafter, and I don't even want to think about the average lifespan for someone with CF. I am really scared for her.

She is one of the strongest people I know.

1 comment:

Kristin said...

I'm so sorry your family has had this disease show up. I hope your mom has many years of feeling well.